Off topic:Any treatment or drugs for menkes diseqses
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8.0 years ago
hua.peng1314 ▴ 100

Hi,all,Maybe ask this question here is not a good choice,but I don't know where I can get some help. One of my friend told me her three months old son is diagnosed to have menkes disease.The boy have mutation c.3801G>C(E19 chrX:77296231 ATP7A).Copper Histidine may help him, but it is a kind of unstable compound.She can not buy it in the hospitals.I wonder whether there is any other drugs or treatment can help this disease or where can we buy some Copper Histidine ? Espeacially in china. Any help will be appricated.

Best regards.

menkes • 857 views
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