Question: Public Electronic Health Records Database
7
gravatar for Abhi
6.1 years ago by
Abhi1.5k
United States
Abhi1.5k wrote:

Any pointers with regards to databases where I can find publicly available anonymous electronic health records ? I need it for an internal research project.

Thanks! -Abhi

database • 42k views
ADD COMMENTlink modified 17 months ago by wilthelight0 • written 6.1 years ago by Abhi1.5k

I need the dataset of admission notes too.

About 1000 documents.
Do you have ?

or Does the button"database" contain it ?

ADD REPLYlink written 4.4 years ago by jwanjwen0
8
gravatar for Khader Shameer
6.1 years ago by
Manhattan, NY
Khader Shameer18k wrote:

I have evaluated a bunch of open access electronic medical record (EMR) / electronic health record (EHR) platforms for a project. OpenMRS have a pre-populated database of patients that could be an ideal fit for your purpose.

You can download:

A sample anonymized data set, including 5,000 patients and 500,000 observations, is available to download for current OpenMRS versions and import into your existing database.

ADD COMMENTlink written 6.1 years ago by Khader Shameer18k

Nice, find any documentation on how it was created? Was it real data that was cleaned up? Or completely simulated?

ADD REPLYlink written 6.1 years ago by Malachi Griffith17k
7
gravatar for Malachi Griffith
6.1 years ago by
Washington University School of Medicine, St. Louis, USA
Malachi Griffith17k wrote:

I am not aware of a database containing electronic health records that is also publicly accessible. I am curious to see if anyone else knows of one.

Depending on what kind of information you hope to use and what country you are operating in, I suspect that it may only exist in simulated form. In places like the US, medical records are protected for privacy and liability reasons (all of the following applies to the US, but Canada, EU countries, and others have similar setups):

privacyrights.org has a useful fact sheet on medical records privacy. Health records generally contain protected health information (PHI), including things like names, any kind of date or age at all, various commonly used identifiers, etc. These types of information are highly protected and their use and distribution is subject to many regulations. The electronic versions are even more protected than those on paper. Organizations that have access to electronics health records (hospitals, insurance companies, contractors, sub-contractors, etc.) are generally concerned with compliance to:

The strict limitations imposed by HIPAA were further enhanced by the HHS in the form of the final Ominibus rule (full PDF).

Some of the largest breaches reported to HHS have involved business associates. Penalties are increased for noncompliance based on the level of negligence with a maximum penalty of $1.5 million per violation.

Furthermore, an organization found to have violated HIPAA, can in certain circumstances be required to advertise their own breach (at their own expense) in the form of TV spots, radio announcements, etc.

You can imagine that given all of that, any organization that does have electronic medical records might be nervous about making them publicly available. It should be possible though if you anonymize and carefully remove all PHI.

ADD COMMENTlink modified 6.1 years ago • written 6.1 years ago by Malachi Griffith17k
2
gravatar for kartoun
4.1 years ago by
kartoun20
United States
kartoun20 wrote:

EMRbots.org was created to allow users to experiment with simulated EMR:

http://www.emrbots.org/

ADD COMMENTlink written 4.1 years ago by kartoun20
1
gravatar for David
5.2 years ago by
David10
United States
David10 wrote:

Thanks for the info.

ADD COMMENTlink modified 4.9 years ago • written 5.2 years ago by David10
1

it's a shame that the bigger players like Cerner are seeing the sharing of information in these areas as an opportunity to make money instead of an opportunity to advance the field of informatics

ADD REPLYlink written 5.0 years ago by swedendrift20

The link for 100 patient database is not working

ADD REPLYlink written 5.0 years ago by Diwan560
1
gravatar for swedendrift
5.0 years ago by
swedendrift20
swedendrift20 wrote:

here is some sample data I have been using as a sample set for testing with hadoop:   https://www.kaggle.com/c/pf2012/data?trainingSet.zip #interesting and comes with a fairly well-defined data definition

ADD COMMENTlink written 5.0 years ago by swedendrift20

Hi Swedendrift. Looks like Kaggle has removed the dataset. Do you still have a copy? Is there a way you could share it please?

Thanks.

Ash

 

ADD REPLYlink written 4.5 years ago by ashoopar10

Hi all. i need copy of this data . any one can help me.

thanks .


 

ADD REPLYlink written 4.5 years ago by eng_doaa.samir0

I'm looking for this very thing as well.  Has anyone had any success?

ADD REPLYlink written 4.3 years ago by Bids0

can anybody help me the same kinda issue. im in a great need of the emr's plzprovide me some of the zip files or links.

ADD REPLYlink written 4.2 years ago by asif.adil5730

 

Hi all. i also need copy of this data . any one can help me.

thanks .

ADD REPLYlink written 4.2 years ago by reenaduggal250

May I also get the copy of this data . It seems very well structured.

ADD REPLYlink written 2.7 years ago by beyanoyadeniz0

Please help me get the data too. I want to use it to help pharmacy students in a college class that explains the behind the scenes of medical databases. The hands-on labs will include basic SQL, table structures, and entity relationships. Having a set of plausible data will help immensely. Thanks in advance!

ADD REPLYlink written 2.7 years ago by marc.lowenthal0

Hi, I am looking for a copy of this dataset, anybody could help me? Thanks in advance

ADD REPLYlink written 2.3 years ago by sara94gg0

Is that data set still floating around? I would like a copy too if anyone still has it.

ADD REPLYlink written 2.6 years ago by aaronvinh70

Does anyone still have a copy of this data? If so, I would love to get a copy of it please! @Swedendrift - is there a way you could share your copy of the data?

Thanks.

ADD REPLYlink written 10 months ago by usinha0
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