Public Electronic Health Records Database
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10.9 years ago
Abhi ★ 1.6k

Any pointers with regards to databases where I can find publicly available anonymous electronic health records ? I need it for an internal research project.

Thanks!

-Abhi

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Thanks for the info.

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it's a shame that the bigger players like Cerner are seeing the sharing of information in these areas as an opportunity to make money instead of an opportunity to advance the field of informatics

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The link for 100 patient database is not working

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I need the dataset of admission notes too.

About 1000 documents.
Do you have ?

or Does the button"database" contain it ?

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10.9 years ago

I have evaluated a bunch of open access electronic medical record (EMR) / electronic health record (EHR) platforms for a project. OpenMRS have a pre-populated database of patients that could be an ideal fit for your purpose.

You can download:

A sample anonymized data set, including 5,000 patients and 500,000 observations, is available to download for current OpenMRS versions and import into your existing database.

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Nice, find any documentation on how it was created? Was it real data that was cleaned up? Or completely simulated?

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10.9 years ago

I am not aware of a database containing electronic health records that is also publicly accessible. I am curious to see if anyone else knows of one.

Depending on what kind of information you hope to use and what country you are operating in, I suspect that it may only exist in simulated form. In places like the US, medical records are protected for privacy and liability reasons (all of the following applies to the US, but Canada, EU countries, and others have similar setups):

privacyrights.org has a useful fact sheet on medical records privacy. Health records generally contain protected health information (PHI), including things like names, any kind of date or age at all, various commonly used identifiers, etc. These types of information are highly protected and their use and distribution is subject to many regulations. The electronic versions are even more protected than those on paper. Organizations that have access to electronics health records (hospitals, insurance companies, contractors, sub-contractors, etc.) are generally concerned with compliance to:

The strict limitations imposed by HIPAA were further enhanced by the HHS in the form of the final Ominibus rule (full PDF).

Some of the largest breaches reported to HHS have involved business associates. Penalties are increased for noncompliance based on the level of negligence with a maximum penalty of $1.5 million per violation.

Furthermore, an organization found to have violated HIPAA, can in certain circumstances be required to advertise their own breach (at their own expense) in the form of TV spots, radio announcements, etc.

You can imagine that given all of that, any organization that does have electronic medical records might be nervous about making them publicly available. It should be possible though if you anonymize and carefully remove all PHI.

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8.9 years ago
kartoun ▴ 20

EMRbots.org was created to allow users to experiment with simulated EMR.

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9.8 years ago
swedendrift ▴ 20

Here is some sample data I have been using as a sample set for testing with hadoop. It's interesting and comes with a fairly well-defined data definition.

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Hi Swedendrift. Looks like Kaggle has removed the dataset. Do you still have a copy? Is there a way you could share it please?

Thanks.

Ash

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Hi all. I need copy of this data. any one can help me.

thanks.

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I'm looking for this very thing as well. Has anyone had any success?

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can anybody help me the same kinda issue. I'm in a great need of the emr's plz provide me some of the zip files or links.

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Hi all. I also need copy of this data. any one can help me.

thanks.

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May I also get the copy of this data . It seems very well structured.

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Please help me get the data too. I want to use it to help pharmacy students in a college class that explains the behind the scenes of medical databases. The hands-on labs will include basic SQL, table structures, and entity relationships. Having a set of plausible data will help immensely. Thanks in advance!

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Hi, I am looking for a copy of this dataset, anybody could help me? Thanks in advance

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Is that data set still floating around? I would like a copy too if anyone still has it.

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Does anyone still have a copy of this data? If so, I would love to get a copy of it please! @Swedendrift - is there a way you could share your copy of the data?

Thanks.

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2.5 years ago
Dan • 0

You can get some real-world data by applying as a researcher for https://researchallofus.org/. I came to this question looking for something similar that's open source.

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