Entering edit mode
10.6 years ago
Robert Sicko
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630
alexej.knaus's post got me thinking whether or not I would want my exome/genome sequenced, if it was provided for free. I'm mostly (~60-40) on the side of more information is better, but can definitely see the arguments of the opposite side. I would like to hear your comments and get an idea if the majority of people would or would not get their exome/genome sequenced.
Yes, if it was accessible only for me. No if it was supposed to be publicly available under my name.
Two years ago there was a similar question here What would you do with your personal genome data? I seemed to be in the minority back then with my opinion.
I must say the passing of years have not really changed this opinion. I would only want to know if I had strong reasons to do it.
Medical genomics is designed to catch bad news, just as two years ago there does not seem to be a genomic marker for happiness.
If there were a genomic marker that told me that there is a good chance that I am going to succumb within the next thirty years to an incurable disease I'd rather not know.
I can see your point of view, but what if there was something you could do to mitigate the effects of a variant? For example, life style changes that reduce carcinogen exposure and/or increased screening if you found you had a heterozygous deleterious mutation in a tumor suppressor gene.
url=http://postimg.org/image/c5qesq0h3/
I will say yes even to making my exome data publicly available, but of course under the conditions of anonymity