Forum: Do You Want Your Exome/Genome Sequenced?
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gravatar for Robert Sicko
5.8 years ago by
Robert Sicko570
United States
Robert Sicko570 wrote:

How To Analyze Your Own Exome got me thinking whether or not I would want my exome/genome sequenced, if it was provided for free. I'm mostly (~60-40) on the side of more information is better, but can definitely see the arguments of the opposite side. I would like to hear your comments and get an idea if the majority of people would or would not get their exome/genome sequenced.

exome-sequencing ngs forum • 1.9k views
ADD COMMENTlink modified 5.8 years ago • written 5.8 years ago by Robert Sicko570
1

Yes, if it was accessible only for me. No if it was supposed to be publicly available under my name.

ADD REPLYlink modified 5.8 years ago • written 5.8 years ago by Biomonika (Noolean)3.1k
1

Two years ago there was a similar question here What would you do with your personal genome data? I seemed to be in the minority back then with my opinion.

I must say the passing of years have not really changed this opinion. I would only want to know if I had strong reasons to do it.

Medical genomics is designed to catch bad news, just as two years ago there does not seem to be a genomic marker for happiness.

If there were a genomic marker that told me that there is a good chance that I am going to succumb within the next thirty years to an incurable disease I'd rather not know.

ADD REPLYlink written 5.8 years ago by Istvan Albert ♦♦ 80k

I can see your point of view, but what if there was something you could do to mitigate the effects of a variant? For example, life style changes that reduce carcinogen exposure and/or increased screening if you found you had a heterozygous deleterious mutation in a tumor suppressor gene.

url=http://postimg.org/image/c5qesq0h3/

ADD REPLYlink modified 5.8 years ago • written 5.8 years ago by Robert Sicko570

I will say yes even to making my exome data publicly available, but of course under the conditions of anonymity

ADD REPLYlink written 5.8 years ago by Sudeep1.6k
10
gravatar for Robert Sicko
5.8 years ago by
Robert Sicko570
United States
Robert Sicko570 wrote:

Yes I would ...

ADD COMMENTlink written 5.8 years ago by Robert Sicko570
4
gravatar for Robert Sicko
5.8 years ago by
Robert Sicko570
United States
Robert Sicko570 wrote:

No I would not...

ADD COMMENTlink written 5.8 years ago by Robert Sicko570
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